Friday, July 16, 2010

Sometimes, the Bleeps and Bloops are a good thing.

We visited Max two times today. The first time, he was back to PSV, and back close to where he was when he was at his best before. He still dips a lot more obviously when he dips, but comes out of it fairly quickly and is doing a lot of the triggering of his breaths on his own. This is a good thing, ultimately as it means that his body understands what it needs to do a bit better, but it just doesn't get the idea enough to have him do it without his hated tubes . Our second visit was more of the same and he looked very comfortable and tucked into his little bed. He was at 24% O2 for the most part and tended to set off his "happy sat" alarm, meaning he was getting more oxygen than he theoretically needed. This is better than not enough, and if he sustains that long enough, they will turn his O2 needs down further and further until he hits the magical room air level at 21%.
His face is getting chubby, and he has an extra chin or two and these chubby little cheeks that are being squished and smooshed by the band-aid used to secure his infernal breathing tube. Hopefully, he'll have a good day tomorrow and we can hold him again. We're totally looking forward to that seemingly mythical time in the future where we can just pick him up and hold him without it having to be such a procedure.

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