Sunday, June 20, 2010

Better news.

We called the NICU tonight and spoke with a very spunky nurse who informed us that Max was doing really well in terms of all of his progress. He was still peeing plenty and his heart rate and blood pressure were doing what they wanted them to. Soon, he’ll hopefully be off of the epinephrine and they will then start decreasing the dosages of his other drugs. He’s also losing a lot of his water weight throughout this time, so everything currently looks hopeful.

We visited Max for a few hours today. There wasn’t a lot of news. Essentially, he’s continuing to do well and is progressing well in the way they want him to. He’s still peeing well, he’s off the epinephrine, they’re starting to wean him off of his other medications, his lungs look better and his gases are great. I got a few gifts from him and they’re cute and awesome. We hope that he continues to progress well throughout the next few days. His face looks a lot less puffy than it did yesterday, and most of the fluid still built up is down at his torso. It will still be a bit until his body is done dealing with all the excess fluids, but we’re happy to see him going in the right direction. When I asked the nurse how common this extreme reaction to the PDA surgery was, I was informed that it’s not that common to have it get this bad, but that it’s not unheard of. The good thing is that he seems to be responding to his treatments really well and that he seems to be on the right track. When he’s done with this mini-ordeal, they can start worrying about making him grow like a proper baby is supposed to. I can’t wait to see him chub up a bit.

We saw our little man again tonight. He was off the dopamine this time, which means that he only has his regular lipids and iv stuff plus the other dobutamine drip. He’s still responding quite well to everything and only really gets annoyed when he gets handled and/or sits in a wet diaper for too long. It’s so much nicer seeing him when he’s doing this well.

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