Slow and steady.

We saw Max today. It was such a good day for the guy. He’s very close to room Oxygen, which means that he’s well on his way to not needing the ventilator. They’ll still want to take their time with it, but at least he’s making progress. He has gained a bit of real weight too. He just seems a bit more filled out in general, and his weight was at 870g today. They also have him feeding with 2.5ml of EBM and have him on very few drugs. The Morphine is gone as are the two “amines”. They have him taking some minor drugs to “take the edge off” here and there, but even those should be done with soon. They removed his catheter and they say that he’s doing a lot of stuff very well on his own. All in all, we had a good day visiting him. He’s just doing so well today that I’m riding the high even more than the last time we visited him. I also got to clean his little mouth today. I’m still quite worried about doing a lot of hands on stuff. I wonder if I can be gentle enough with him and his tininess. Either way, it was great to get to do that. Someday soon, I will change his diaper.

We went back late in the evening. Max was doing really well again. They had him up on the ventilator’s Oxygen percentage again, which was expected as they’re slowly making changes to his ventilator settings with the hopes that he continues onward down the path to not needing it. He was on his tummy when we got there and they had him up to 2.5ml of EBM, with the expectation of bringing it up to 3ml shortly. He opens his eyes every now and then to look around, and he seems to be less cranky about his surroundings. Today has been a great Max day, so I’m still going to ride the high while I can.